Englishspeaking patients - MEN 1 Register

The  German database for MEN1 has been in existence since 1995. Its aim is  to register patients and follow up the course of their disease. The  database can be of great help to answer scientific questions in order to  improve the care for the patients and their families. We hope for  further collaboration with many patients and colleagues. We want to  thank all of you who supported us to develop and maintain the German  MEN1 database. Some years ago, we implemented a new way for patient  registration and documentation to make it easier for doctors to  participate. Ethical criteria are met as well. Also we want to update our data. We look forward to your participation. Please feel free to  contact us for any further questions.

How to participate?

All  patients from German speaking countries with Multiple Endocrine  Neoplasia type 1 (MEN 1) can take part and be registered at the German  MEN1 database. For registration it is sufficient to return the signed  declaration of consent (original) to us. Please send us all previous and  current medical records and documents related to your disease. You can  send them by mail, fax or e-mail. This is important to keep the data  updated. The staff from the German MEN1 database will probably contact  your medical experts (if you have given us their contact details) from  time to time to send current medical records. This is necessary to keep  the data updated and to provide a high standard of quality.  Documentation is done only by the staff of the German MEN1 database.  This is new and helps to minimize the work load for your doctors.