English - MEN Register

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The German database for MEN1 has been in existence since 1995. Its aim is to register patients and follow up the course of their disease. The database can be of great help to answer scientific questions in order to improve the care for the patients and their families. We hope for further collaboration with many patients and colleagues. We want to thank all of you who supported us to develop and maintain the German MEN1 database. In 2016, we implemented a new way for patient registration and documentation to make it easier for doctors to participate. Ethical criteria are met as well. Also we want to update our data. We look forward to your participation. Please feel free to contact us for any further questions.
How to participate?
All patients from German speaking countries with Multiple Endocrine Neoplasia type 1 (MEN 1) can take part and be registered at the German MEN1 database. For registration it is sufficient to return the signed declaration of consent (original) to us. Please send us all previous and current medical records and documents related to your disease. You can send them by mail, fax or e-mail. This is important to keep the data updated. The staff from the German MEN1 database will probably contact your medical experts (if you have given us their contact details) from time to time to send current medical records. This is necessary to keep the data updated and to provide a high standard of quality. Documentation is done only by the staff of the German MEN1 database. This is new and helps to minimize the work load for your doctors.
Patient information ( please click for downloading on the picture)
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